Living with a chronic condition, whether degenerative (hereditary) or congenital (not hereditary) means that you or your loved ones care needs to adapt as the condition progresses and changes over time. Getting the right care and support to see you through those changes can make all the difference.
There are a lot of different conditions such as Multiple Sclerosis (MS), Parkinson’s Disease, Muscular Dystrophy, Huntington’s Disease, Motor Neurone (MND) Disease and Cerebral Palsy to the less well-known such as Friedreich Ataxia, Kennedy’s and Marfane Syndrome Disease. In the UK over 320,000 people live with a degenerative or congenital condition at any one time and not everyone will be affected in the same way.
At Ocean Healthcare our nurse-led care team work closely with the individual, their family and their medical professionals to ensure that their personal care plan meets their needs. These plans are regularly reviewed to ensure that we’re always providing the right level of care and support
However, it’s not just about medical or clinical needs. A person with a condition still has things they want to achieve and do. This could be a special aim or goal they want to achieve or simply being able to get involved in an activity on a daily basis. Therefore, we see our role as carers is as much about supporting and enabling them to achieve these goals as it is caring for their medical needs.
Our care teams are fully trained and have specialist skills to ensure they can support a range of complex conditions at home using appropriate specialist equipment.
Being at home allows someone greater independence as well as the opportunity to build or maintain precious relationships with families and friends. There are other benefits too including: